Alex & Diana Klurfeld Discuss How to Help Your Child Cope with His Rare Condition
I had an opportunity to sit down with Diana and Alex Klurfeld of Klurfeld Cares to discuss issues facing children who mainstream medicine has left behind. These children suffer from diseases that remain medical mysteries for the most part. And according to Alex Klurfeld , “if your child has been diagnosed with a rare condition, you may have felt as though you’ve had the air knocked out of you.” But remember that you’re not the only one whose world just came crashing down when you were given that news. When your 11-year-old heard the word “hemophilic,” he heard, “You can’t play as other kids do.” When your teenager listened to the effects of Ehlers-Danlos Syndrome, he heard, “Your aspirations to be an NFL Football Player have been ground to dust.” You have something much more important to consider than yourself, and it’s probably at the top of your mind—how do you help your child cope with his or her rare condition? Maintain Normalcy The first of fiv...